The TTTS Support Team

TTTS Support Team TAPS Support twin anaemia polycythemia sequence

In 2011, a group of parents got together with a mission to help grieving families who had lost children to Twin To Twin Transfusion Syndrome, and formed the TTTS Support Team
In 2012, they sent their first grief support package, and since then, they have sent almost 1000 packages all across the world. They are a non profit organisation, staffed entirely by volunteers who are also families affected by TTTS, TAPS, TRAP and SIUGR.

We’re proud to be affiliated with the TTTS Support Team as they connect families affected by these diseases, and support them through some of the hardest times they’ve been through. Their dedication and care for these families is amazing. They also regularly upload stories from TTTS, TAPS, SIUGR and TRAP families to their website – TTTS Parents, ensuring that families have a wealth of resources and stories to let them know they’re not alone in their journey.

If you’d like to support them in their work, please consider making a donation. All proceeds go directly into running the charity and ensuring that families get high quality, handmade gifts from their volunteers, and meaningful memorials for their loss.